Company description
The FH Foundation is a patient-focused philanthropic association devoted to training, promotion, and exploration of Familial Hypercholesterolemia (FH). Our mission is to bring issues to light and recovery exists by expanding the rate of ahead of schedule finding and empowering proactive medicine. In the event that left untreated, FH prompts forceful and untimely coronary illness in ladies, men and kids of all racial and ethnic foundations.
The FH Foundation dispatched its site in 2012, giving dependable data on the truth of FH. We have a Facebook, Twitter and Linkedin account, where individuals can connect with us specifically. To individuals who register, we send quarterly pamphlets and in addition breaking news upgrades. We distribute news articles and blog entries on our home page and we additionally answer to request on an individual premise, giving backing to our parts.
Our significant activity is the FH Foundation's across the nation CASCADE FH™ Registry. We have employed the Duke Clinical Research Institute (the biggest scholarly clinical exploration association on the planet!) to construct and operationalize the registry. This will be the main dynamic FH registry in the US. All information gathered and examine thereof will be IRB-sanction. It is focused around a cross breed model, joining together clinician- and patient-entered information. We are to a great degree energized (and pleased!) to deal with this colossal undertaking, something we feel is highly required in the FH group.
Because of enthusiasm toward our association from diverse continents, we are additionally deciphering our instructive materials in different dialects, including Spanish, Portuguese, Italian, German, Mandarin, Russian, French, and Lebanese. We would like to arrive at not just individuals who are as of now diagnosed with FH, yet the individuals who may be at danger of having it.
